A BIT ABOUT US

Lilli was just 4 years old when she woke up one morning cross-eyed and seeing double.  A few days later, she was diagnosed with an optic glioma, a brain tumor that was pressing on her optic nerve and growing quickly.  Lilli’s only treatment option was chemotherapy to stop the growth of the tumor that, if left untreated, could result in blindness in her left eye.  Lilli began her year of weekly chemotherapy treatments in February 2019.  She chose to wear a yellow Belle Princess dress from Beauty and the Beast for her first appointment and was greeted with smiles and excitement about her dress. 


For 52 weeks, Lilli’s princess dresses became her suit of armor, giving her the courage to make it through the treatments and frequent trips to Children’s Hospital.  The night before each appointment, Lilli spent time picking out the perfect dress to wear and did not repeat a dress once, which made every week a new surprise for the amazing care team at UPMC Children’s Hospital of Pittsburgh. Lilli's dresses were her way to share the “Princess joy” with everyone.  


Lilli’s dresses transformed a very tough situation for both her and her family into something to look forward to, something positive. 


At Costumes for Courage, our goal is to continue to share the joy that Lilli’s dresses bring to other children and families in similar situations. 

 

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